Data and analytical tools

See also the Public Health England website.

End of Life Care data to inform Sustainability and Transformation Partnerships (STPs): Updated Tool and Metadata Guide

30 October 2017

The National End of Life Care Intelligence Network (NEoLCIN) present key data about end of life care to assist Sustainability and Transformation Partnerships (STPs) as they develop their plans for services.

NEoLCIN have published this data as an End of Life Care Sustanability and Transformation (STP) Tool - Version 3 with a Metadata Guide - Version 3.

The spreadsheet includes the most recently available data for 24 indicators presented at STP and CCG level, and includes the number of deaths, the age, cause and place of deaths, data describing hospital admissions near the end of life together with information on the number of care home beds and use of palliative care registers by GP practices.

This information will be of use to end of life care commissioners and care providers and can contribute to identifying best practice and local priorities for action.

Important Note (30 October 2017): NEoLCIN have made a number of improvements to the End of Life Care Sustainability and Transformation (STP) Tool - Version 3 and Metadata Guide – Version 3. All previous versions of the Tool and Metadata Guide should be deleted and only Version 3 should be used.

If you would like to feedback any comments on the Tool or Metadata Guide, please email neolcin@phe.gov.uk 


Cost-effective commissioning of end of life care

9 February 2017

The National End of Life Care Intelligence Network and Health Economics team in PHE have published a number of products to support commissioning decisions for end of life care services.  These include:

A report ‘Understanding the health economics of palliative and end of life care’. The first half of the report presents the findings of a review of the available literature on the costs and effectiveness of different initiatives and schemes designed to improve patients and carers experiences at the end of the patient’s lives. The second half of this report describes the new end of life care economic tool and the methodology underpinning this tool.

An end of life care analytical tool. This interactive tool is made up of two components. The first provides a summary of the costs, impacts and wider issues associated with different interventions and services for providing care and support for patients at the end of their lives. The second component enables the user to explore the potential trade-offs associated with shifting resources and activity away from secondary care into primary, community and social care settings.

The end of life care analytical tool user guide. This document provides a step-by-step guide to the end of life care economic tool.

These products will be of great importance for decision-makers. They will help them when they are considering the potential improvement, or indeed the potential decline, in the quality and safety of care, and patient experience, in conjunction with the net financial implication, when considering the implementation of interventions. Moreover, they will assist stakeholders when looking at current capacity of care provision and whether it can adequately cope with a potential influx of primary, community and social care activities for end of life care.

Download the report, analytical tool and user guide.


Trends in leading causes and place of death, England 2005 to 2014

July 2016

NEoLCIN have produced an excel based tool and user guide to highlight variations in the leading causes of death and places of death by Strategic Clinical Network (SCN). This data resource provides stakeholders with some of the greater detail they have requested about cause of death trends and place of death.

Providers and commissioners of end of life care services in a range of organisations such as clinical commissioning groups (CCGs), social care and public health can use this excel based tool to inform planning, development and reconfiguration of services. This will support service planning for health and social care professionals in England and across SCNs. The reporting format is intended to facilitate working between charitable, voluntary, patient/carer-led and professional networks and across organisational boundaries.

Data is presented by age, sex and leading cause of death group, as absolute numbers and proportions from 2005 to 2014.


Child mortality data (under 25 years), England 2004-2013

Following publication of Why Children Die (Royal College of Paediatrics and Child Health), and in response to a local query we produced a national report to show the number of children (aged under 25 years) who died in England between 2004 and 2013.

The results are shown by Strategic Clinical Network, age band, aggregated cause of death group, place of death, and whether or not the underlying cause was listed in the Directory of Palliative Care v 1.4 (Disease trajectories and ACT/RCPCH categories in paediatric palliative care. Palliat Med 2010, 24, 796-806. Wood F, Simpson S, Barnes E, Hain R)


Deaths from Alzheimer's, Dementia and Senility in England, 2001 to 2009

Interactive spreadsheet to compare numbers and rates of deaths from Alzheimer's disease, dementia and senility in England by Primary Care Trust. This tool relates to the NEoLCIN report, Deaths from Alzheimer’s disease, dementia and senility in England and uses the same data source (Office for National Statistics annual mortality extracts). (Published November 2013)


Deaths from Neurodegenerative Diseases in England, 2002 to 2008: data by Primary Care Trust in England

Interactive spreadsheet to compare numbers and rates of deaths from neurodegenerative diseases in England by Primary Care Trust. This tool relates to the NEoLCIN report, Deaths from Neurodegenerative Diseases in England, 2002 to 2008' and uses the same data source (Office for National Statistics annual mortality extracts). (Published September 2013)


End of Life Care for All (e-ELCA)

The e-learning programme End of Life Care for ALL (e-ELCA) aims to enhance the training and education of the health and social care workforce so that well-informed high quality care can be delivered by confident and competent staff and volunteers to support people wherever they happen to be.

There are over 150 highly interactive sessions available.


End of Life Care Modelling Tools

A selection of tools to support end of life care commissioning and planning based on population need, workforce skills and costings for alternative pathways of care. (Published May 2012)


Health Profiles

The Health Profiles provide a snapshot overview of health for each local authority in England. They are conversation starters, highlighting issues that can affect health in each locality.

Health Profiles aim to:

  • provide a consistent, concise, comparable and balanced overview of the population’s health
  • inform local needs assessment, policy, planning, performance management, surveillance and practice
  • be primarily of use to joint efforts between local government and the health service to improve health and reduce health inequalities
  • empower the wider community

More information is available on PHE's Fingertips platformHealth Profiles


National General Practice Profiiles

These profiles are designed to support GPs, clinical commissioning groups (CCGs) and local authorities to ensure that they are providing and commissioning effective and appropriate healthcare services for their local population.

In addition to viewing individual practice profiles, you can view summary profiles for CCGs. Each practice can be compared with the CCG and England, and also with the practice deprivation decile.

More information is available on PHE's Fingertips platform National General Practice Profiles


Disease and risk factor prevalence

Knowledge of the frequency of disease is an important prerequisite for understanding population health, case finding, commissioning and planning services, and understanding variation in health and care. The most commonly used measure of disease frequency is *prevalence* which is an estimate of the number of cases of a given disease or risk factor in the population at a point in time (*point prevalence*) or over a given time period (*period prevalence*).

More information is available on PHE's Fingertips platform Disease and risk factor prevalence


Older People’s Health and Wellbeing

The Older People’s Health and Wellbeing Profile can be used to examine the health and care of older people across local authorities in England. This tool enables identification, comparison and monitoring of trends through interactive charts of 41 indicators.                                                           

The profile is designed to support those responsible for delivering strategies for prevention and early intervention to improve the health and wellbeing of older adults, as well as those providing evidence and intelligence to support the development of Joint Strategic Needs Assessments for their local area. The information provided in this profile is also likely to be of use to a wide range of organisations with an interest in the health and care of older people.

More information is available on PHE's Fingertips platform Older People’s Health and Wellbeing

End of Life Care Profiles
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