Data and analytical tools
See also the Public Health England website.
Cost-effective commissioning of end of life care
9 February 2017
The National End of Life Care Intelligence Network and Health Economics team in PHE have published a number of products to support commissioning decisions for end of life care services. These include:
A report ‘Understanding the health economics of palliative and end of life care’. The first half of the report presents the findings of a review of the available literature on the costs and effectiveness of different initiatives and schemes designed to improve patients and carers experiences at the end of the patient’s lives. The second half of this report describes the new end of life care economic tool and the methodology underpinning this tool.
An end of life care analytical tool. This interactive tool is made up of two components. The first provides a summary of the costs, impacts and wider issues associated with different interventions and services for providing care and support for patients at the end of their lives. The second component enables the user to explore the potential trade-offs associated with shifting resources and activity away from secondary care into primary, community and social care settings.
The end of life care analytical tool user guide. This document provides a step-by-step guide to the end of life care economic tool.
These products will be of great importance for decision-makers. They will help them when they are considering the potential improvement, or indeed the potential decline, in the quality and safety of care, and patient experience, in conjunction with the net financial implication, when considering the implementation of interventions. Moreover, they will assist stakeholders when looking at current capacity of care provision and whether it can adequately cope with a potential influx of primary, community and social care activities for end of life care.
Download the report, analytical tool and user guide.
Trends in leading causes and place of death, England 2005 to 2014
NEoLCIN have produced an excel based tool and user guide to highlight variations in the leading causes of death and places of death by Strategic Clinical Network (SCN). This data resource provides stakeholders with some of the greater detail they have requested about cause of death trends and place of death.
Providers and commissioners of end of life care services in a range of organisations such as clinical commissioning groups (CCGs), social care and public health can use this excel based tool to inform planning, development and reconfiguration of services. This will support service planning for health and social care professionals in England and across SCNs. The reporting format is intended to facilitate working between charitable, voluntary, patient/carer-led and professional networks and across organisational boundaries.
Data is presented by age, sex and leading cause of death group, as absolute numbers and proportions from 2005 to 2014.
Following publication of Why Children Die (Royal College of Paediatrics and Child Health), and in response to a local query we produced a national report to show the number of children (aged under 25 years) who died in England between 2004 and 2013.
The results are shown by Strategic Clinical Network, age band, aggregated cause of death group, place of death, and whether or not the underlying cause was listed in the Directory of Palliative Care v 1.4 (Disease trajectories and ACT/RCPCH categories in paediatric palliative care. Palliat Med 2010, 24, 796-806. Wood F, Simpson S, Barnes E, Hain R)
Dementia prevalence and diagnosis rates for Great Britain.
Interactive spreadsheet to compare numbers and rates of deaths from Alzheimer's disease, dementia and senility in England by Primary Care Trust. This tool relates to the NEoLCIN report, Deaths from Alzheimer’s disease, dementia and senility in England and uses the same data source (Office for National Statistics annual mortality extracts).
Interactive spreadsheet to compare numbers and rates of deaths from neurodegenerative diseases in England by Primary Care Trust. This tool relates to the NEoLCIN report, Deaths from Neurodegenerative Diseases in England, 2002 to 2008' and uses the same data source (Office for National Statistics annual mortality extracts).
The e-learning programme End of Life Care for All (e-ELCA) aims to enhance the training and education of the health and social care workforce so that well-informed high quality care can be delivered by confident and competent staff and volunteers to support people wherever they happen to be.
There are over 150 highly interactive sessions available.
A selection of tools to support end of life care commissioning and planning based on population need, workforce skills and costings for alternative pathways of care.
A benchmark tool which brings together data from a variety of sources to get an overview of end of life care across the Yorkshire and Humber region. This tool is designed to be used alongside the End of Life Quality report.
Local Health Profiles
Each year, the Public Health Observatories, on behalf of the Department of Health, produce Health Profiles for every Local Authority in England. Designed to help local government and health services make decisions and plans to improve local people's health and reduce health inequalities, the profiles present a set of important health indicators that show how the area compares to the national and regional average. They include information on: mortality rates; smoking related deaths - including deprivation correlation; early deaths from cancer, heart disease and stroke; road injuries and deaths; and excess winter deaths.
View the Local Health Profiles 2011.
A web-based mapping tool developed by Marie Curie that helps commissioners to plan for local end of life services. Also available Death and dying:understanding the data report.
These two tools are produced by the East of England Public Health Observatory (erpho) on behalf of the Public Health Observatories in England. The National General Practice Profiles present a range of indicators by GP practice, including information about patient demographics, patient satisfaction, Quality Outcomes Framework (QOF) data and secondary care use. The Disease Prevalence estimates have data on coronary heart disease, cardiovascular disease, chronic obstructive pulmonary disease, hypertension and stroke. The estimates are available for PCTs, lower and upper tier local authorities and GP practices.
This online tool has been produced by WMPHO on behalf of the PHOs. The Atlas contains interactive maps and charts enabling comparisons to be made nationally for over 100 indicators. It can be used to identify deficits in the health and care of older people and to highlight large variations between local authorities across England. The information will be of use to the wide range of organisations with an interest in the health and care of older people.
The UK Renal Registry is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society.