Research Summit 2015

Public Health England and NHS England brought together researchers, clinicians, funders and the public to better understand the palliative and end of life care research areas currently underway and to explore how to use research and knowledge generation to improve end of life care. The event was held on Thursday 15 January 2015.

The Palliative and end of life care Priority Setting Partnership together with the James Lind Alliance launched their top ten priorities at this event. They were established in 2013 to help patients and clinicians work together to prioritise areas for research.

The objectives of the summit were:

To update on policy and roles in research, Public Health England and NHS England
To gauge the extent to which current research can contribute to improving end of life care
To launch the top research priorities identified by the Palliative and end of life care Priority Setting Partnership with the James Lind Alliance
To identify areas and potential partners for future research
To explore what is needed to get from knowledge generation to impact on practice
To provide a networking opportunity for researchers, clinicians, funders, policy makers and the public

Expert speakers included:

Dr Bee Wee, National Clinical Director for End of Life Care, NHS England
Professor Julia Verne, Clinical Lead, National End of Life Care Intelligence Network, Public Health England
Dr Bill Noble, Medical Director, Marie Curie Cancer Care
Katherine Cowan, Senior Adviser to the James Lind Alliance
Bernadette Hannigan, R&D Associate Director, Public Health England
Professor Ruairidh Milne, National Institute for Health Research

Event programme

Full event programme

Event Partners

NHS Improving Quality and James Lind Palliative and End of Life Care Priority Setting Partnership.

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Presentations from the Plenary Sessions

Welcome and introduction

Dr Bee Wee, National Clinical Director for End of Life Care, NHS England

Introduction to Public Health England and National End of Life Care Intelligence Network

Professor Julia Verne, Clinical Lead, National End of Life Care Intelligence Network, Public Health England

Doing, Supporting and Using: The Public Health England strategy for research, development and innovation

Professor Bernie Hannigan, Director, Research and Development Research, Public Health England

Randomised Conversation Trial - Networking session

Professor Julia Verne, Clinical Lead, National End of Life Care Intelligence Network, Public Health England

Overview of current research. Presentation of information submitted from researchers

Dr Michelle Barclay, Research and Evaluation Lead, Improvement Capability, NHS Improving Quality

Funding palliative and end of life care research

Dr Nicholas Hicks, Consultant in Public Health Medicine, Consultant Advisor NIHR Evaluation, Trials and Studies Coordinating Centre

Launch of the top ten priorities identified by the James Lind Alliance Palliative and End of Life Care priority setting partnership

Katherine Cowan Senior Adviser to the James Lind Alliance and Dr Bill Noble, Medical Director, Marie Curie Cancer Care

Research into practice: developing evidence based guidelines

Beth Shaw, Associate Director for Methodology, National Institute for Health and Care Excellence

Research into practice quality standards improvement methodology

Professor Moira Livingston, Clinical Director Improvement Capability, NHS Improving Quality

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Presentations from the workshop sessions

Workshop 1

Developing research priorities into funded research

Chair: Dr Bill Noble, Medical Director, Marie Curie Cancer Care

Workshop 2

Managing ethical and practical hurdles to palliative and end of life care research presentation by Dr Catherine Evans

Managing ethical and practical hurdles to palliative and end of life care research presentation by Dr Anthony Byrne

Chair: Dr Bee Wee, National Clinical Director for End of Life Care, NHS England supported by Dr Catherine Evans NIHR Clinical Lecturer Palliative Care, Head of Research and Development, and Clinical Nurse Specialist Sussex Community NHS Trust, King's College London and Dr Anthony Byrne, Consultant in Palliative Medicine, Cardiff and Vale University Health Board

Workshop 3

From knowledge generation to practice: Question time

Chair: Professor Christopher Eccleston Pain, Palliative and Supportive Care (PaPaS) Cochrane Review Group with Phil Wiffen, Editor, Adrian Tookman FRCP, Medical Director Marie Curie Hospice Hampstead, Clinical Director Marie Curie Cancer Care and Beth Shaw, Associate Director for Methodology, National Institute for Health and Care Excellence

Workshop 4

‘Just enough data': quality improvement methodology

Chair: Anna Burhouse, Director of Quality, West of England Academic Health Science Network with Tricia Woodhead Associate Clinical Director, West of England Academic Health Science Network and Julian Abel Medical Director and Consultant in Palliative Care, Weston General Hospital

Panel Discussion

Chairs closing remarks

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