Palliative care clinical data set

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Evaluation Report

Published: December 2016

In September 2014 and April 2016, the National End of Life Care Intelligence Network and NHS England published a two joint statements* about our plans to work together to explore the feasibility, options and costs of collecting individual-level adult palliative care data nationally.

We have worked with an Expert Reference Group consisting of clinicians, researchers, data experts, commissioners, people with personal experience, and colleagues from 11 pilot sites to develop and test such a data set.  This project came to an end in June 2016.

This Evaluation report presents the story of pilot work to collect data about outcomes achieved for individuals by specialist palliative care services. It contains the lessons learned within the project and makes recommendations for the future.

The Evaluation report should be useful to policy makers, commissioners and providers in particular, to inform and guide future activity and should be read alongside the Palliative care clinical data set Guidance and definitions report.

Download the report Palliative care clinical data set Evaluation report

*More information about the joint statements can be found on the GOV.UK website.



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