Other publications

**Last updated July 2017**

The following end of life care related publications are all published by other organisations and are organised by topic. These will be added to over time.

Cancer

Dementia

Ethnic minority populations

General service providers

Health services provision

Research methods

Palliative care

Social care

Spend on end of life care

Suicide

Cancer

More than a million - understanding the Uk's carers of people with cancer (Ipsos MORI and Macmillan Cancer Support, 2011)

Geographical Patterns of cancer survival in England, patients followed to 2010 (Office for National Statistics Statistical Bulletin, 2012)

Where do patients with blood cancer die? (National Cancer Intelligence Network, 2011)

Where do cancer patients die? The varying provision of end of life care to cancer patients in the West Midlands (West Midlands Cancer Intelligence Unit, 2011)

Advance care planning for cancer patients in primary care: a feasibility study (National Center forBiotechnology Information, 2010)

Changing Patterns in Place of Cancer Death in England: A Population - Based Study (PLOS Medicine, 2013)

Home and hospice deaths increasing since the launch of national programme (Cicely Saunders International and Kings College London, 2013)

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Dementia

Unlocking diagnosis - The key to improving the lives of people with dementia (Alzheimer's Society, 2012)

End of life care for people with dementia living in care homes (Social Care Institute for Excellence, 2012)

National Audit of Dementia (Care in General Hospitals). (Royal College of Psychiatrists‟ Centre for Quality Improvement, 2010)

National Audit of Demetia (Care in General Hospitals) (National Audit of Dementia Team, 2010)

Counting the cost: Caring for people with dementia on hospital wards (Alzheimer's Society, 2009)

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Ethnic minority populations

Older BME People and Financial Incusion Report - The future ageing of the ethnic minority population of England and Wales (Runnymede and the Centre for Policy on Ageing, 2010)

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General service providers

Improving housing with care choices for older people: an evaluation of extra care housing (Personal Social Services Research Unit, 2011)

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Health services provision

Dying well at home: the case for integrated working (Social Care Institute for Excellence, 2013)

End of Life Pathway Leadership Board Quality report (Yorkshire and Humber Quality Observatory, 2012)

End of Life Summary (Yorkshire and Humber Quality Observatory, 2012)

Care is not a Commodity (United Kingdom Homecare Association Ltd, 2012)

Inside your hospital (Dr Foster Intelligence, 2011)

Home care in London (Institute for Public Policy Research, 2011)

Trajectories of End-of-Life Care in the Emergency Department (School of Nursing, 2010)

Supporting the dementia family caregiver: the effect of home care intervention on general well-being (Centre for Reviews and Dissemination, 2010)

The Quality of Death: Ranking end-of-life care across the world (Economist Intelligence Unit, 2010)

New end of life care services brings benefits for patients and health service: case study (Department of Health, 2010)

End of Life Care, November 2008 (National Audit Office, 2008)

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Palliative care

Developing an Asset Based Approach: A practical guide to developing an asset based approach to workforce learning and development (Health Education England, 2017)

Specialist Palliative Care Workforce Survey (The National Council for Palliative Care, 2011)

Shape of the Medical Workforce: Informing medical training numbers and Palliative Care factsheet (Centre for Workforce Intelligence, 2011)

Transitions to palliative care in acute hospitals in England: qualitative study (BMJ 2011;342:d1773doi:10.1136/bmj.d1773)

Choice and decision-making in palliative care: a study of patients’, carers’ and health care professionals’ experiences (Queens Medical School)

Palliative Care Funding Review, Interim Report, 2010.

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Research methods

End of Life Care: Methods Review (School for Social Care Research, London School of Economics and Political Science, 2012)

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Social care

Exploring the cost of care at the end of life Research report (Nuffield Trust, 2014)

The economic impact of care in the home services - a report commissioned by the Red Cross (British Red Cross, 2012)

Health Committee - Fourteenth Report: Social Care (Health Committee, 2012)

Care in crisis 2012( Age UK, 2012)

Older Londoners (Institute for Public Policy Research, 2011)

Social care funding and the NHS: an impending crisis? (The King's Fund, 2011)

Care and compassion? - Report of the Health Service Ombudsman on ten investigations into NHS care of older people February (Parliamentary and Health Service Ombadsman, 2011)

Evaluating effectiveness of the GSFCH and LCP in care homes (End of Life Care, 2010)

Social care and hospital use at the end of life, December 2010 (The Nuffield Trust, 2010)

Using the Gold Standards Framework in Care Homes: An Evaluation of the Phase 2 programme (School of Health Sciences, University of Birmingham, 2007)

Longitudinal Study of Elderly People Admitted to Residential and Nursing Homes: 42 months on (Department of Health, 2000)

Spend on end of life care

End of Life Care Strategy - monitoring investment, 2010/11 (Department of Health, 2011)

Suicide

Suicide and Self-Harm in the South West (South West Public Health Observatory, 2011)

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