How to use this website

Last updated 2014.

Who and what is the website for?

This website was set up to share information about end of life care for adults in England. Its focus is on data, statistics, research and evidence, which have a vital role in improving end of life care services. Most of the information provided is for professionals, especially researchers and those who have to make decisions about policy or end of life care services, but anyone can use it and we hope that many people do. If you would like to know more about the development of the website and what the National End of Life Care Intelligence Network does, please see About us.

How this website is organised

There are four main areas on this website. Click on each of the links below to read more about what you will find there:

1. End of Life Care Profiles

2. Resources

3. Data sources

4. Advice and information

End of Life Care Profiles

PHE's Health and Intelligence Team specialise in analysing data to improve our understanding of health nationally, regionally and locally. They are expert at finding ways to compare health across different geographical areas.

The End of Life Care Profiles is a tool that was developed so that we can compare key end of life statistics from one Local Authority area in England to another. For example, the tool can tell us how many people die in each Local Authority, the age at which they die, how many were men and how many women. It can also tell us how they die (causes of death) and where they die (hospital, at home, nursing home etc.). 

Visit the End of Life Care Profiles

Resources

Another aim of this website is to provide links to useful information found elsewhere on the Internet. So far, we have included links to useful PublicationsResearch and Links to useful organisations.  

The National End of Life Care Intelligence Network also commissions its own publications. These are free to download from the Publications page.

Data sources

For anyone doing research in the field of end of life care, it is very useful to know where to go to find data and statistics that can be trusted. The data sources section provides a comprehensive guide to where to find information on topics such as carers, dementia, hospital care, social care, sudden death etc. We will keep adding to these topics as the website develops and new Data sources become available.

Just click on the topic link on the data sources page and you will see a table describing the available data sources for that topic and where to find them on the Internet.

If you have any suggestions for data sources that we can add, please let us know by contacting neolcin at phe dot gov.uk link neolcin@phe.gov.uk .

Advice and information

If you are a patient, carer or concerned friend or relative, you may have questions about what end of life care services are available or what help you are entitled to receive, whether financial or in terms of support and care. This area of the website gives lists of organisations that are expert in answering questions of this kind and provides links to their websites. We hope that you find this information useful. Please let us know if there are other organisations that we could add to this list or if there is other information that you would like to see on this page. You can email us at neolcin at phe dot gov.uk link neolcin@phe.gov.uk .

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End of Life Care Profiles
Resources
Data Sources
Advice and information
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