Palliative Care Clinical Data Set pilot sites

11 pilot sites were recruited to test the data collection in 2015/16. The pilot sites were chosen to represent a range of settings, geographical areas, services types (NHS and non NHS), IT systems, and experience of using outcome measures. These are:

• Addenbrooke’s Hospital, Cambridge University Hospitals NHS Foundation Trust
• Forest Holme Hospice, Poole, Dorset
• Greenwich and Bexley Community Hospice
• King’s College Hospital NHS Foundation Trust
• Marie Curie Hospice, Solihull
• Mid Yorkshire Hospitals NHS Trust*
• Newcastle upon Tyne Hospitals NHS Foundation Trust
• North London Hospice
• Rennie Grove Hospice Care, St. Albans, Hertfordshire
• St Luke’s Hospice, Plymouth
• St Luke’s Hospice, Sheffield

*Note: Mid Yorkshire Hospitals NHS Trust withdrew from the pilot early on. East Cheshire Hospice joined later in its place.

An evaluation of the pilots is planned for Summer 2016.

Poster: Developing the evidence base for specialist palliative care: piloting a new data collection to measure patient and carer outcomes

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