Information standard data items summary

National information standard summary data items

This is a summary of the data items included in the national information standard Palliative Care Co-ordination: core content (SCCI1580). For details please see the Palliative Care Co-ordination Requirements specification.

1.	Consent
	Consent Status*
2.	*Record creation date and record amendment* dates**
3.	Plan and requested actions
	Planned review date
	Cardiopulmonary Resuscitation Decision – whether a decision has been made, the decision, date of decision, location of the documentation and date for review
4.	Person Demographics
	Person Name*, including preferred name
	Date of birth*
	Person address*
	NHS number* and NHS number indicator code*
	Person telephone number
	Gender
	Relevant contacts
	Main carer name and contact details
	Availability of carer support*
5.	Special requirements
	Need for interpreter
	Preferred spoken language
	Functional status
	Disability
	End of Life Care Tools in use eg Gold Standards Framework
6.	Information and advice given
	Is main carer aware of person's prognosis?
	Is person aware of the cardiopulmonary resuscitation clinical decision?
	Family member/carer informed of cardiopulmonary resuscitation clinical decision?
7.	GP Practice
	GP Name*
	GP Practice details*
8.	Key worker
	Name
	Telephone number
9.	Services and care
	Names of health and social care staff and professionals involved in care
	Professional group
	Telephone number
10.	Diagnoses
	Primary end of life care diagnosis*
	Other relevant end of life care diagnoses and clinical issues
	Allergies or adverse drug reactions
	Likely prognosis
11.	Allergies or adverse reactions
12.	Medications and medical devices
	Whether a 'just in case box' or anticipatory medicines have been prescribed
	Where these medicines are kept
13.	Legal information
	Advance statement
	Requests or preferences that have been stated
	Advance Decision to Refuse Treatment (ADRT)
	Whether a decision has been made, the decision, date of decision and the location of the documentation
	Lasting Power of Attorney or similar
	Name and contact details of person appointed with Lasting Power of Attorney (LPA) for personal welfare
	without authority to make life-sustaining decisions
	with authority to make life-sustaining decisions
14.	Person and carer's concerns, expectations and wishes
	Preferred place of death 1st and 2nd choices if made
	Names and contact details of others (1 and 2) that the person wants to be involved in decisions about their care
15.	Actual place of death
16.	Date of death

*Completion of these items is mandatory.

Palliative Care Co-ordination Implementation guidance

Palliative Care Co-ordination Record keeping guidance

Palliative Care Co-ordination Summary record keeping guidance

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Palliative care co-ordination: core content (SCCI1580)